Prolapsed Discs

Sharing Stories About Your Experiences - Symptoms, Diagnosis and Treatment

Jude Robinson
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  • United Kingdom
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Our support group continues to grow, thank you all xxx

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Latest Activity

November 26
Jude Robinson and Sarah Dudson are now friends
November 16
Andrew Wilson and Jude Robinson are now friends
November 4
Hi Tracey Welcome to the site, I really hope you find it helpful to chat with people in the same boat as you. Unfortunately, I haven't got a happy tale to tell, not yet anyway. Microdiscectomy in May 08, epidural injection in March 09, moved from E…
November 2
November 2
Hi Zafar Firstly welcome to the site, think it's the first time we've spoken. I'm sorry to hear that you are struggling with a prolapsed disc. I struggle with one too. I went to see my Osteopath before I knew that I had a prolapsed disc and althou…
October 20
Oh Liz my lovely. I'm so so sorry. For some reason I wasn't notified of a new blog post so just read this. I can't believe it, I really can't. Please know that you are not alone hon. You can email me directly if you need to anytime, I'll message you…
October 19
I read this and wanted to share with you all. Rx
September 15

My Story - It's A Long One :D

Up until November last year, I was a recognised Birth Doula with Doula UK. I awoke one Friday morning in November at 6am to my son who was teething. I leaned over his cotbed to tend to him and I felt my back 'go'. An hour later, I got a call from my client saying she was having regular contractions and could I come.

A gorgeous baby boy was born 22 hours later however by this point, I was in excruciating pain with my back and I hobbled back to my car and drove home.

The following day, the Saturday, I was still in agony, my back went into spasm walking down the stairs and I couldn't move for about 5 or 10 minutes.

By the Sunday, the pain had moved from my back into my left buttock/leg and foot and I felt this strange numbness. I've never experienced anything like it and the pain, well, I've always said and will always say, I'd rather give birth than experience that pain!!!!

I managed to get an appointment with my osteopath on the Monday, relief all round as I thought he would take the pain away as he has done on the few other previous occasions I've been to see him with lower back pain.

My dad drove me there, I was lying in the back of his car and after seeing the osteopath I hobbled back to the car still in as much agony. Phone call to my GP on the Tuesday, prescribed Volterol, Diclofenac and 2 days worth of Diazapam. I took them all, I just didn't care as I was constantly writhing on the bed or settee - I couldn't sit down, I could only lie or stand.

The tablets really knocked me out and I finally got a little sleep. On Thursday my husband travelled to Germany thinking that I was improving. By early hours of Friday morning I was writhing in agony again. Being on my own, my first call was to my mum. My mum and dad came to the house at 1.30am, called for an ambulance and off I went to hospital.

By this point I couldn't sit down to go to the toilet so in the end they had to catheterise me. I had an X-ray and MRI scan the same day and was told I had an L5/S1 prolapsed disc and I remained in hospital for almost a week. At first I was on morphine but then this fantastic Pain Specialist prescribed me Gabapentin - a tablet that epileptics take everyday of their lives but found to help specifically with nerve pain. If I could shout from the rooftops about how this tablet can really help nerve pain I would!!!!

And so, once home, the pain was being managed much better and I tried to keep moving. I had physiotherapy for 3 months and 2 sessions of hydrotherapy.

At the end of January, however, because my recovery had plateaued, the physiotherapist suggested I go back to see my Consultant which I duly did in early February to be told I had a sequestrated prolapse compressing my sciatic nerve, large disc and it's unlikely to recover without an operation.

My Consultant at that particular hospital only carried out open discectomies so I asked to be referred to a spine specialist in a different hospital who was experienced with the micro-discectomy procedure.

And so in March I saw this new Consultant at Hope Hospital in Manchester, fantastic bloke, explained everything including the risks and so I went on the waiting list for the operation.

I had my micro-discectomy on the 14th May 2008, a very positive experience for me - the surgeons, the nursing staff, even the food I could rave about! The pain was almost gone, it took me about 6 weeks to wean myself off the Gabapentin tablets. I still had numbness down my leg and foot however I knew that because the sciatic nerve had been compressed for so long, this would take a lot longer to recover.

And so, some months later, my mobility began to come back much better, I could walk without much of limp and things were looking great, I felt very positive about the outcome.

However at the end of July 2008, I started to have back pain again and some discomfort in my right buttock, so I contacted the hospital and got an urgent letter of referral from my GP. I had a so-called 'emergency' MRI scan date which is the 30th October, then another 3 months for an appointment to see my surgeon, laughable eh?

Turns out I've still got a small bulge pressing on my sciatic nerve. Had an epidural injection in March 2009 for pain relief which helped a bit but now back to having painkillers again. Waiting to see a specialist in mid Wales now so the story goes on.

Jude Robinson's Blog

Jude Robinson

Been given 3 options

Hi ladies and gents

Thanks to one and all for joining, contributing and supporting each other on this social network site. As you know I set this site up quite a while ago now and from a personal point of view, I'm glad to know I'm not alone.

I'll try to keep my update as brief as possible (but I waffle a lot lol). As some of you know I've been a fellow sufferer since November 2007 and I had a micro discectomy in May 2008 for a prolapsed disc L5/S1 which affected my left leg and foot.

In July… Continue

Posted on September 7, 2009 at 8:44pm — 3 Comments

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At 9:32am on August 19, 2009, Karen Bray said…
Hi Jude,
Many thanks for invite as friends! It is so good to have a site where I can share and chat to others who know what I am going through at the moment. Friends and family are great but really feel that they think I should be better by now and it is only a back problem. I dont think they understand how difficult and how painful it is and can be just to do ordinary life!!
At 7:31am on July 21, 2009, Alison said…
Hi Jude,
I think our problems are pretty similar, I had discectomy feb 2009 the pain reduces slightly after 3 months of hell, but is now back with a vengeance, I am going to see another surgeon this morning to see what can be done as 2nd scan post op looks just the same as scan pre op so not sure what was removed really hence seeing different surgeon, as I don’t feel first surgeon was open and honest as everything he told me before he operated just didn’t match up, and I feel I have lost all faith in him,
Had better get ready as I have an hour and half drive to the hospital
Take care
Ali x
At 10:05pm on July 20, 2009, elizabeth brown said…
Hi jude see my spinal specialist on 7th august to confirm if complete disc removal is going ahead so shall keep you posted..my doctor says i have a possible chance of fybromalagia because of back pain for three yrs but so hard to detect even in tests..
shall keep you posted and update the site when i have news..
good luck jude at new hospital hope you ind the help you need there.
hugs liz x
At 8:44am on June 5, 2009, Laney Pullen said…
Hi Jude , thanks so much for your comments , saw my osteopath yesterdayand just had a soft tissue massage feeling loads better but still walking with a zimmer frame like an old dear ! So confused about whether to have the op or not but am regaining feeling in saddle area so I take that as a good sign , still on all the drugs but feeling much happier , no tears so far today , have been independant all my life and just feel so useless , good to know I'm not the only one , Laney x
At 12:07am on February 12, 2009, Leah said…
Hi Jude...im sure u have seen de mgs between myself n Mike....he has been so thoughtful! My latest news is dat i went 2 a new doc 2day 4 a 2nd opinion! She was disgusted bout how i was bein treated! She gave me loads of tablets n is ringin de physio in de mornin 2 get me in asap!! She told me i shud have had surgery when de epidural didnt work n especially when ive got saddle anesthesia n weak legs! She measured my calf muscles 2day n my left calf is 1 inch smaller than my right due 2 muscle wastage!! Im glad i went 4 a 2nd opinion,finally sum1 believes n understands wot im goin through n wants 2 do sumting bout it!!! Il keep u updated....hopefully wit gud news in de nxt few days!!!

P.S......Its a great site n i dont feel alone n think im de only human bein sufferin from these horrible prolapsed discs!x
At 1:44pm on September 19, 2008, Angela said…
Hi Jude,

I haven't been online for a few days, we had a problem with the computers connection but it's fixed now. I'm ok thanks but my back's started to ache again, nothing like it was prior to the Injections I had in July. I've had 6 weeks pain free. It's been great, one of the Consultants team rang me yesterday to see how I'd been getting on. I have to go and have the procedure done again, she said this might take my pain away altogether, so I'll give anything a go. This time though I've asked to be sedated as the pain was terrible last time. So I just have to wait for my date now.

I've been having trouble with my mouth for over a year now, I'm getting worried to be honest. I have Ulcers all along the left side of my mouth and my tongues really sore all the time. I went and had a Biopsy done last August, they said it was due to the medication I was taking. But I still have them now and I'm worried it might be something like Mouth Cancer, I've got an appointment at 3pm today to see my Doctor about it.

I've started at College 1 day a week, I'm doing the AMSPAR Intermediate Diploma in Medical Reception course, it's a years course. Hopefully when I finish I should get a job at the Hospital or a Doctors Surgery. You'd think I'd have seen enough of those places already but the pays great and it's really interesting too.

Anyway enough about me, how are you keeping. Do you still have any pain. What have you been up to.

bye for now,

hugs Angela x
At 9:55am on August 21, 2008, Angela said…
Hi Jude,

I've got an appointment this afternoon to go and see a Psychologist, I'm not really sure why I have to see her. What a night I had I forgot to take my Morphine tablets last night, god I woke up at 3am in a cold sweat, I couldn't keep still, I felt terrible, god knows what it's going to be like when I eventually do try to stop them. My backs still ok after having those injections 3 weeks ago, I only hope it lasts. It's been great having no pain! I hope that you're ok. Speak to you soon.

Angela
At 7:47pm on August 18, 2008, Rachael Seeley said…
Hi Jude

Just decided to write my page and you know what I just couldn't! It sounded so depressing..................lol

Hope you ok, and yes to be writing this I am back home..............hoorah

Rx
At 8:45am on August 4, 2008, Helen Hammond said…
Jude
Do you want me to start the alternative pain relief in the forum or do you want to add 'groups' to your site, then people can see at a glance what topics you are covering?
H x
At 3:36pm on August 3, 2008, Nikki said…
Jude,
As I said over at WM's - anything I can do to help, just let me know.
Nikki
x
 
 

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